She wrote of caring for her friend with whom she lived who was diagnosed, suffered from and died of AD.
In my Blog I made the following comment which was part of a longer comment about her book:.
The author and so many other selfless caregivers I know are our quiet angels who are there, always!
The author at the end of this book speaks of her experience of a Spiritual Epiphany shortly after her friend’s death. She relates as she was in Church thanking God for giving her this friend to care for she was able to see the wonderful gift that was hers in this friend.
The pain of her friends illness, the burden of caring for her, the agony of her friend’s death coupled by the loss of her, through her experience of it all, transformed an arduous undertaking into one truly blessed in every way.
She advised me on getting my book published and was one of my initial reviewers. I knew of the trauma of caring for her sick friend and new the cost of the nursing home really drained them as extra was spent in trying to secure adequate care in the nursing that just was not being provided.
Although we never discussed her finances in the email exchange with my friend the author I suspected her net worth was severely taxed as this otherwise self sufficient, well educated, professionally competent author’s style of living changed dramatically from having her own home to rooming in other people‘s homes. The cost leading to the death of her friend became a continuing burden.
Recently surgery was required to correct severe cervical problems in her neck. I knew her to have been released to the room she rented at very limited activity. She lost her room and had no alternative but to enter a homeless shelter. Not able to work she did not have the money any longer following her friend’s death to be able to take care of herself.
I just learned my friend was living in a homeless shelter following the surgery I learned of this reading this entry on a blog to which we both comment.
Referring to her current home at the shelter she stated in comment:
They can't spell Alzheimer's, or pronounce it, here at the Homeless Shelter. Residents and staff don't understand anything about Alzheimer's.
I recently wrote of one woman here who I know had some form of Dementia. When I spoke to her case worker to have her Baker Acted, the case worker said they were working on it. That is after two months. Is it that they are just collecting this woman's Social Security check?
The woman was eventually thrown out on to the streets. Now get this: She had stolen another woman's purse. Think about it, what do Alzheimer's people do? They steal things, not on purpose, they think it's theirs. My heart went out to this woman. I yelled to the point I almost got thrown out myself.
And I can't do that now. I have a roof, a bed, and food. I need this for a time at this point in my life.
People need to know what this disease is about. But so many don't want to listen, unless they were caregivers or it has touched a loved one close.
Afraid so Carole I am in the homeless shelter.
I had a neck operation which costs lots. The owner is selling the house where I rented my room. So after the assisted living facility, I had no other choice. I'm on a year’s waiting list for Low Cost Housing in my County
Believe it or not, the first few weeks were awful. I blended into the walls with the other faceless women. They are mostly young abused women here. Only a few of us are older gals: a teacher, an interior designer, and me.
If anything I'm writing another book on a new subject. Plus it's giving me time for my neck to heal.
Thanks for asking Carole.
I wrote my friend upon learning of this. She responded:
Yes, this is really a big test for me. I never in a million years thought this would happen, but it has, and I'm trying to change my thoughts to change my life.
Mike, I can't begin to tell you what this is like. I wonder if this is just in my locale, or all over the nation?
Here there are young, woman, mostly black, from different countries, Haitian, Trinidad, Jamaica, Puerto Rico, and American Blacks.
There are also military women who have served, waiting for disability, so I'm told.
Then there are women like me, I seem to be the oldest at 68.
I've never been in prison, but this is what I'd say it's like. The military girls seem to adjust much easier then us country club women.:-)
I'm so happy you wrote me. I always love hearing from you. I hadn't been on the Internet for a month and a half so I'm way behind. I finally broke down and bought one of the Verizon gadgets I plug into my lap top and go any where with it.
I'm paying $250 a month for bed with two other women, and meals. Then they want another $150 for savings, so I figure out of the savings I can be on the Internet for $50. This give me some sane moments.
Yes, I have written 260 pages so far. But I'm probably going to get sued unless I change the names to protect the innocent. The staff is strict, but I guess they need to be after what I've seen: namely, abused women mostly punching each other out, calling names, etc.
Very different from the life I was used to. I won't go on; you'll have to buy my book.
This person was an AD caregiver, cared for her friend through a long convalescence the result of AD which included time in a nursing home. Now, age 68, she has needed to go into a homeless shelter recovering from extensive cervical surgery. She was cleaned out by the surgery and before that by the cost of her friend’s illness.
This leaves her the Collateral Damage of Alzheimer’s Disease.
As such this friend leads a long list of folks soon to be forming all of whom will be cleaned out by the over expensive care of this disease leaving them not enough to care for themselves in the end.