Resolve learned from a life of surviving adversity tells you accept it, make the best of it, overcome as much of the disruption and make things better. That in mind you seek the help of the community. You find support, you are enormously pleased!
You work with “the help.” You are dismayed. While they seem to know what they are doing they confine their actions. Only that tested and proven, only that known to be effective……
It is like drawing against a stack deck. An even harsher metaphor, it is like playing Russian Roulette with a fully loaded revolver. You are just not going to win. “Their Way or the Highway”, and while your on the highway do not distract, divert or question!
This is the view from the inside out of Alzheimer’s Disease (AD). It is frustrating to say the least.
Yesterday I posted a report from the New York Times citing some good news as contained in a new book “The Alzheimer’s Action Plan,”. Today I read the New York Times Report entitled: Years Later, No Magic Bullet Against Alzheimer’s Disease. Click on the Magic Bullet to go to the article which I have posted in the archive. Go to this Blog’s posting yesterday to see what I wrote about the book.
The Times article “No Magic Bullet” is dismaying to people like us trying to deal with the frustration of knowing we are caught in the vortex of this debilitating disease.
The article notes the Conclusion of the National Institute of Health (NIH) after their jury of experts decided, because there is insufficiently convincing evidence that any of the measures considered to prolong an AD sufferer in early stage to stay there for a while without getting worse. Because of the insufficiency, in their infinite wisdom, the leap to the decision that it DOES NOT! Because there is the absence of evidence proving these measures that proves they do not.
Unfortunately this is a step taken too far. The NIH takes a negative, namely, insufficiently convincing evidence. It is on this negative they formulate the conclusion medication and other measures, essentially taking medication, following a program where you Eat Right, Exercise Daily, and Participate in Social, Creative and Intellectually Stimulating Activity, do not work.
These measures will not prolong one in the early stage. Nothing can be done but wait the coursing of the disease. It is for this reason a conclusion cries out why diagnose it, why tell anyone the have it, why try to treat it. Give them all the soporifics they can tolerate to anaesthetize them to the loss and ultimate death that will come unremittingly.
God! What a return to the dark ages. This is unbelievably a stupid, ignorant insensitive exercise of medical and professional arrogance! A negative is held to prove a positive scientifically the net affect of which is to deny people suffering the most calamitous disease faced in the 21st century any hope, care or support.
“Put ‘Em All In ‘Da Warehouse, Heh, Where Ya Don’t Have To See ‘Dem No More!”
This is the bad news today.
It prompted me to dig up the memo I prepared noting what we proposed on the panel in which Diane and I participated before the National Alzheimer's Association and the AoA (Federal Agency on Aging) in Washington DC.
The memo is entitled Action Needed On The Alzheimer's Front. I have posted that memo on my archive and strongly recommend its being read. Click on the memo title to go there.
Take note of my ending of the menu wherein I say:
f in fact it is not scientifically proven dispositive, it is psychologically sufficient. Its efficacy is sufficiently suggestive of contributing to my prolongation in Early Stage. It enhances my Quality of Life helping me to stay in the present lane as slip into the next more debilitating lane.
My alternative life style is depression. Having it and waiting for the next shoe to drop does nothing but hurry its fall. It produces further debilitation into the more harmful stages of AD. That fall is mid-stage, late stage, institutionalization, mindlessness then death.
This kind of depression is predicated on the proposition “Why not get on with it if nothing can be done for it, get it over with for god’s sake!”