I Have This Terminal Disease,

It Moves So Slow It Is Killing Me!





Dementia Endured

One of 25 Best Alzheimer’s Blogs of 2012

alzheimers dementia blogs

Mike Donohue is a brave man. Courageous, direct, and bold, his blog energizes readers with a passion for action. Dementia Endured gives a hint in the title as to the nature of this talented writer: he will endure. And with a personality like Mike’s, it’s easy to believe that he shall overcome, as well!

His life experiences are opened to the reader, and his journey recovering from alcoholism to adjusting to Alzheimer’s holds its own fascination for visitors to his site. Mike’s strength and determination will remind readers that dementias are one area in which it’s best not to hold any punches.

THIS BLOG IS ABOUT MY JOURNEY FROM AA TO AD.

I have survived alcoholism from which
I recovered thirty six years ago then
Alzheimer's disease with which I was
diagnosed nearly five years ago. Both
have had profound consequence. They
are associated, one leading to the other.

I write about the experience in a book
click on the title to go to it or read more
about it in the column to the right

Saturday, August 13, 2011

WHAT’S WRONG WITH THIS PICTURE PART 6.3


This post continues the segments of a paper I have posted in my Archive  under the hypertext title: WE NEED TO EXPAND OUR CONCENTRATION If you find this interesting and want to read it in its entirety click on the title to go to my Archive where it is posted as one.




2. We Need To Give Emphasis To Economy Of Cost Of Care

Alz.Org needs to concentrate on formulating and developing programs of care offering a greater economy than those as now exist.

When a family is faced with its diagnosis of Alzheimer’s disease it faces a variety of issues that need immediate resolution. One of these is the handling of their estate which may be irretrievably altered by reason of the current prognosis for care of the Alzheimer’s afflicted.

Financial Issues of First Facing This Disease.

Of the many things that need to be dealt with will be:

1. What will happen if the care needed has cost for which the family is not presently prepared to pay.

2. Is there long term health coverage to pay this?

3. Does Normal Health Care coverage or Medicare provide any help?

4. Is the Alzheimer afflicted able to continue working, earning the same salary? Is the spouse working earning income, is that enough to currently support the family?

5. If income of one subsides or of all of them reduce will the family be able to make it?

6. Where does the family go to fill the gap?

The Answers To These Questions Are Not Pretty!

1. The family’s private funds are normally the first source for payment of any cost of care not immediately covered by the insurance of the family.

2. Long Term Health Care coverage, if sufficient, if it specifically makes provisions, and is designed to run a sufficiently long, will pay cost of care in the home and out of home care provided by agencies qualifying for reimbursement. This applies to most institutional Nursing Home and Assisted Living Facilities. It may apply to some day care and group home settings.

3. Health Care coverage and Medicare do not pay anything but immediate Hospital and Medically related expenses provided as part of treatment. This most often does not include Nursing Home, Assisted Living facilities or equivalent styles of In House or Away from Home kinds of help.

4. In the event of diminution in earnings in the household by reason of the disease the private funds of the families are the first if not only source to make up the difference. Charitable or public assistance is predicated on the inability to pay and in many cases is difficult to get unless there is no other way.

5. If the family cannot make it, Public Assistance is available as well as assistance from many giving groups.

6. The problem is for those in-between.

Available Options.

Long term health care seems worth every penny paid for it, if you have it. If you do not, with an Alzheimer’s diagnosis it is unlikely you can get it. But, remember, you get what you pay for, no more, no less. If you were smart enough and have it be sure it pays enough. Be sure it runs long enough. Be sure it covers Nursing Home and Assisted Living Care. 

These are pretty basic to all of them. Be sure in addition they cover cost of home care and cost of out of the home care not the normal institutional Nursing or Assisted Living facility. Look at the type and kind of services it pays for. Does it pay for the normal group home, called foster home in some states? What are the qualifications, if any, for the home should payment for it be sought? The same applies to Home Care. Is the person who comes in to provide care qualified, certified, or. can just anyone provide the service required by simpler needs such as attendance, cooking, cleaning etc.

Financial Planning

Some financial planning with an expert is recommended. This is most important when it comes to evaluating the availability of Public Assistance. A need for care does not automatically produce Public Assistance. The law is very specific in determining where and how you qualify for it before you can get it.

In most cases the funds of the husband and wife seeking assistance (their entire estate) cannot exceed a few thousand more than 100,000 between them. This may seem to be enough. It is not when you stop to consider this:

When the need for Assistance kicks in the current need of the family doesn’t kick out, it continues. As an example: The husband, no longer earning income, needs daily attendant care. If the wife is home, able to give it that is not a new cost. In this situation the couples living conditions do not change however, they continue as they were.

The cost incident to the disease only goes up and too often is yours alone. What this means is: Current cost of living does not go down, if anything it goes up. These costs continue during the lifetime of both the husband and the wife. Circumstances change what those costs might be. They can go up, they can go down. We of course know their usual direction.

They will go down if the husband needs to go into assisted living or nursing home or some other out of home care facility. Without regard to who pays the cost of this the expenses do go down for the wife to the extent she no longer has to pay the eating and living expenses of the husband. She need no longer pay those costs incidental to his living at home. These are the only costs that stop. Housing, clothing, medical care, health insurance for both, electricity, heat, rental or mortgage expense, insurance, car care, these all remain.

When the husband dies the wife’s financial needs do not change appreciably with respect to herself. They continue. They continue her life time.

Now we come to totaling all of this to see how long that $100,000 lasts. Pull out your budget. What do you pay a month, a year? What of it will change if at all when one of you enters out of home care? Of the fixed amounts multiply them by the number of years of life expectancy the survivor is likely to live. Will it last?

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