I Have This Terminal Disease,
It Moves So Slow It Is Killing Me!
One of 25 Best Alzheimer’s Blogs of 2012
Mike Donohue is a brave man. Courageous, direct, and bold, his blog energizes readers with a passion for action. Dementia Endured gives a hint in the title as to the nature of this talented writer: he will endure. And with a personality like Mike’s, it’s easy to believe that he shall overcome, as well!
His life experiences are opened to the reader, and his journey recovering from alcoholism to adjusting to Alzheimer’s holds its own fascination for visitors to his site. Mike’s strength and determination will remind readers that dementias are one area in which it’s best not to hold any punches.
Tuesday, March 29, 2011
Monday, March 28, 2011
- One might argue why, why try to extend something so awful? The reasons are pretty fundamental.
- Economy in Care should become our mantra, our slogan for political challenge. The success of this effort saves our country from economic bankruptcy sure to happen as soon as the “Boomers” start entering the Nursing Home en Masse.
- Is it possible to prolong Early Stage for sake of Economy?
This subject was alluded to in the post Creative Programs, a God-Send for Surviving the Ravages of AD Longer at the end of which I listed brain plasticity or Neurogenesis. These are two of the names used to describe the working capacity of the brain to regenerate lost synapses, to find new pathways and generally regenerate itself.
Saturday, March 26, 2011
- In 2010, Alzheimer’s and other dementias cost American society — families, insurers and the government — $172 billion.
- In 2050, those costs will increase to over $1 trillion (in current dollars).
- Over the next 40 years, Alzheimer’s will cost America over $20 trillion, enough to pay off the national debt and still send a $20,000 check to every man, woman and child in America.
- Between 2010 and 2050, the costs to Medicare of caring for someone with Alzheimer’s will increase over 600 percent — and the cost to families in out-of-pocket costs will grow more than 400 percent.
- A person with Alzheimer’s disease on average, costs Medicare three times more someone without the disease.
Friday, March 25, 2011
I'll continue to try to shine a new light of awareness on the needs of millions of people either already diagnosed or rapidly approaching early Alzheimer's. Those baby boomers are just eight to ten years behind me, and they are going to be getting their diagnoses with early Alzheimer's in exponentially growing numbers over the next few years. For their sake, I pray that the Association will dramatically change its course and turn its attention and resources to providing the information and support that will help people with early Alzheimer's adopt the lifestyle prevention strategies that can significantly improve their lives and slow the progression of their disease.
Wednesday, March 23, 2011
- Make a list of difficulty that Alzheimer’s Disease (AD) folks generally contend with in their day to day otherwise functional lives. Include such things as many cannot drive, need to take Metro Mobility, many can ride the bus, and the ability to move about on their own without losing there way. They come off pretty normal cuz that is what they are.
- Give them a task, with detailed instructions how to perform it, one they can focus on easily and put them to work.
- Place them with other people with dementia, volunteering, if for not other reason than the company, camaraderie and joy of being together. They will be there every time.
- Although they are quite capable do not give them a task that they are solely responsible for another. There is often no danger in this but an insurer for the volunteer supervising authority might howl.
- Make a second list of all businesses, services, medical, social and service agencies that might need help and benefit from volunteers to do it.
- Get on the phone, send out an email, don’t text, ask: “Can you use any of our pool?” With this be sure to explain the benefit to them, the safety in it for them and the service it would be to the people on you are seeking to place.
- Discuss with them the service for which your pool could volunteer the safety to them and to the volunteer organization in carrying it out.
- Set up a program with each volunteer organization defining in detail what the program entails, how it would be done, how many needed at a time, the working space or place and the person in charge of them with a good description making sure they understand who they are working with, what they need and what they can do.
- Make a third list of people interested in volunteer placement. Determine from the list the people with an interest and a desire to go to whatever volunteer organization is most suitable for them and do the volunteer task assigned them and set it up
Tuesday, March 22, 2011
I love to volunteer. There is magic in it articulated in the good feeling that comes when I help out. It knows little equal in human experience and in human expression. My first undertaking on retirement was to volunteer as a visitor at the Hospice Ward run by a nearby hospital. This was rewarding beyond my ability to imagine.