In the meantime I am starting a new corner for comments and articles that come up in the course of my reading. This will happen randomly with no regularity. When I see or write something I like you will see it posted.
By Bob DeMarco
Alzheimer's Reading Room
If so, how does this stigma effect a person living with Alzheimer's (or any type of dementia)?
How does this stigma effect an Alzheimer's caregivers ability to care, or function?
How have you been affected by Alzheimer's?
I am interested in learning if you believe there is a stigma attached to Alzheimer's?
How does this stigma effect you? What effect has it had on the reactions of your family and friends?
Do ignorance and denial play a role in this stigma?
If Alzheimer's was better understood would this stigma go away? Or, be reduced?
Are people prejudiced against people with Alzheimer's disease?
How do you think the stigma associated with Alzheimer's could be reduced, or eradicated?
Please take the time to use the Add New Comment box below to share your thoughts and feelings on this issue.
They are the crowd who say the worst thing that could happen to me would be to have Alzheimer’s Disease (AD). That is their only impression, only response, they never grow beyond that even when looking AD in the face.
Their knees jerk screaming “shun,” “get away from me,” you just imagine you have it, quit dramatizing and seeking sympathy,” “I don’t know what to do, what to say, so I don’t, lest it be wrong.” This rendition could go on into infinity.
Fear, control, possessiveness, denial…. are but a few of the reasons for it and for it staying with a person even when someone known to them all of a sudden is diagnosed with it. It is a paralysis that keeps them from learning anything about it; they simply want it out of their presence. “Put it away” the say! “I can’t handle it!”
The sorriest part is those who prey on our circumstance with their own agendas that embed the stigma more deeply in us. This is the no hope, no cure, nothing we can do but raise more funds to find the cure bunch.
They accentuate the worst of AD, which is easy to find and describe and scare the pants off everyone not exposed to it. Their agenda in doing this is to scare people into believing they too might get this awful malady unless they contribute money to avoid it. Painted with this purpose this just ncourages more stigmas.
Harry John’s, CEO of the Alzheimer’s Association said it 1-27-11, short in days to a year ago:
A year ago? And, what I quote was said in a public pronouncement accompanying the release of the latest compilation of facts and figures about AD. Does that have an effect on Stigma? You answer that one.