I Have This Terminal Disease,
It Moves So Slow It Is Killing Me!
Dementia Endured
One of 25 Best Alzheimer’s Blogs of 2012
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Mike Donohue is a brave man. Courageous, direct, and bold, his blog energizes readers with a passion for action. Dementia Endured gives a hint in the title as to the nature of this talented writer: he will endure. And with a personality like Mike’s, it’s easy to believe that he shall overcome, as well!
His life experiences are opened to the reader, and his journey recovering from alcoholism to adjusting to Alzheimer’s holds its own fascination for visitors to his site. Mike’s strength and determination will remind readers that dementias are one area in which it’s best not to hold any punches.
THIS BLOG IS ABOUT MY JOURNEY FROM AA TO AD.
I have survived alcoholism from which
I recovered thirty six years ago then
Alzheimer's disease with which I was
diagnosed nearly five years ago. Both
have had profound consequence. They
are associated, one leading to the other.
I write about the experience in a book
entitled From AA to AD, a Wistful Travelogue
click on the title to go to it or read more
about it in the column to the right
Wednesday, February 8, 2012
So When Do We Get Real? HUH!!!
There we were, creekside. The water was raging with spring
run-off. We all ardently watched the water’s turmoil. No one watched the
toddler with us. All of a sudden the little guy wasn’t there. We heard his
scream. We looked and saw him foundering out in the swift moving water of the
creek.
Oh My God we said, all of us in unison. Gary is gone, what
should we do? I’ll dive in and save him said Darrel. Darlene his wife said no
way you will be killed too. Matt said he would get his canoe off the car and
save Gary with that. Charlie said no, there is no time to untie it, haul it
down to the shore and get if. Gary will be blocks away by then if still alive.
I couldn’t believe this. More suggestions were made,
discussion of these alternatives ensued. We were all engaged in the arguing
none of us taking any action to save Gary. Certainly one of us could have
jumped into the car, gone down to the foot bridge and waited for Gary and
pulled him out there. We all knew the bridge was there very close to the water,
low enough to reach down and snag Gary.
Did we do it? No we were too busy arguing about the right
choice as Gary passed under the bridge and was found days later far from it
lying on the creek bottom lodged by a large stone. He was hooked in the
dragging done to find the little boy’s body.
How could we being so bright spend our time arguing how to
save him, when doing it was so very simple?
The plague of Dementia which Alzheimer’s Disease (AD) is one
or more forms of dementia is in a cloud passing over us right now. And the
cloud is dropping rain laced with the Dementia germ. It is spreading
exponentially through our populace. It is growing in numbers who have it. It is
reaching epidemic proportions and still growing.
It is the toddler who fell in the water and drowned as we
argued how to save him. We are doing the exact same thing with the Epidemic of
Dementia now quickly building soon to engulf us then bankrupt us. The numbers
are there, they are real it would be redundant for me to repeat them.
This essay is about a recent
article first appearing in My Health News Daily entitled New Alzheimer's Criteria Would Change Diagnosis for Millions. It is in my Archive,
click on the title to go there and read it.
The article tells us this:
Almost everyone currently diagnosed with a mild form of
Alzheimer's disease would be downgraded to not having the condition, if new
proposed criteria for the diagnosis of cognitive problems were applied, a new
study shows.
Instead, people diagnosed as having "very mild" and
"mild" Alzheimer's disease would be
reclassified as having mild cognitive impairment (MCI), which is currently
recognized as an intermittent stage between the normal loss of mental function
that comes with age and the development of dementia.
This can be argued as both good and bad but gets us nowhere, the
toddler remains at risk with nothing being done to save him. If Early Stage is
no longer AD, no longer Dementia, is rather a mild thinking impairment that
could be part of the process of aging or part of the process of leading to
Dementia, trust nothing will be done to help while a person is in that stage.
If anything this change in classification removes the horrific
stereotype of a person who has AD!
I started this essay with the title: So When Do We Get Real? HUH!!!. Getting real is accepting
the numbers for what they are and what they will do. Then it is doing something
about them rather than arguing with each other about what to do. That is
happening now.
·
Too many of the Pros say nothing can be done.
Keep them safe, when you can no longer do that, put ‘em in the nursing home.
·
Something happened on the way to the nursing
home, then filtered down to assisted living homes, home care and day care.
65-70% of the nursing homes are owned and run by for profit corporations. “For
Profits” tend to be chains big box systems in which care is homogenized to one
way fits all for whatever reason they are there. They are big, pretty and they
pack lots of drugs to keep the inmates soporized (a new word that describes the
after effects of soporifics aka high potency tranquilizing-doping drugs!)
·
It is useful to use these statistics predicting
the coming epidemic to scare the socks of folks to contribute to find the cure.
·
Taking the milder forms of AD, (The Early Stage of
Dementia where we remain functional) out of the AD classification is perhaps
politically motivated to excuse the absence of help for anyone but Fund Raisers
and Drug Companies as it now is. When Dementia of any kind is let to go too far
in its debilitating development it will take something like Magic to cure it.
The toddler is in the water, it is
rushing downstream, soon to drown. It will drown if no one takes action to save
it.
We need to quit arguing for
priority and start dealing with reality. Something can be done short of magic
and that is treatment, therapy and programs designed to keep the so called
folks with Mild Cognitive Impairment (CMI) functioning and out of the orbit of
need presented by the cost inflated services amalgamated by the sleight of hand
of Banks, Wall Street and Big Government.
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