I Have This Terminal Disease,
It Moves So Slow It Is Killing Me!
Dementia Endured
One of 25 Best Alzheimer’s Blogs of 2012
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Mike Donohue is a brave man. Courageous, direct, and bold, his blog energizes readers with a passion for action. Dementia Endured gives a hint in the title as to the nature of this talented writer: he will endure. And with a personality like Mike’s, it’s easy to believe that he shall overcome, as well!
His life experiences are opened to the reader, and his journey recovering from alcoholism to adjusting to Alzheimer’s holds its own fascination for visitors to his site. Mike’s strength and determination will remind readers that dementias are one area in which it’s best not to hold any punches.
THIS BLOG IS ABOUT MY JOURNEY FROM AA TO AD.
I have survived alcoholism from which
I recovered thirty six years ago then
Alzheimer's disease with which I was
diagnosed nearly five years ago. Both
have had profound consequence. They
are associated, one leading to the other.
I write about the experience in a book
entitled From AA to AD, a Wistful Travelogue
click on the title to go to it or read more
about it in the column to the right
Monday, April 2, 2012
All in Moon Shadow II, Part 2
I ended Part
1 of All in Moon Shadow with the following 3 paragraphs:
Life is but a weigh station on our trip in the Cosmos. The Cosmos,
whatever it is, is the place or power from which our consciousness emanates. It
was conscious before we acquired our body and conscious after we leave this
body to decompose back to earth. This body has been but the Avatar through
which we navigate in this unique Cyberspace we know as Life.
That
is what breaking down the free will each of us knows so well and each of us
understands to be uniquely ours amounts to. It is ours and it isn’t ours. Like
everything else in this virtual reality we know as life it is there and then it
slips away on us. Sometimes we are its volition other times we have absolutely
nothing to do with it.
Life is but a moment in something so much more of
which we are or at least part. Free
will is in the moon shadows along with all else we perceive to be. As but
shadows it is less than real but more than purposeful.
What is this Cosmos and what are we in it? Are we in it wholly
or as part? Do we call the Cosmos God! Should we not anthropomorphize God we see
but active power available for the sharing all for the asking. In AA this was
recognized as a very spiritual and not an altogether religious way of looking
at it.
The best
that can be said of god, cosmos, higher power is this: There is a transcendent
power available for us that works within us to better our lot by being here in
this dimension utilizing it.
Fit into
this framework when AD reared its ugly head with me I asked: “So what’s with
this Crap. Have I not had enough to deal with? I need this agony too?”
The answer
was found by doing as I did with this abrupt and complete change wrought over
me. My doing was articulated in the surrender to it; the acceptance of it; the
act of choice I made to produce as good a run having AD as I could. The
validation came in the sense of fulfillment, in the peace and serenity I found
conducting myself in my new mission.
This
measured the greater of any other undertaking of my life of which they were
many. All of my life I felt I was the Great Imposter, soon to be found out, in
spite of all the success I evidenced by each accomplishment of my life. All
said and done, I felt with my success it was no more than an accident, I was an
imposter having no right to take any credit for any of these accidents.
With AD, no
longer was I the Imposter; I was for real; I was about being real. Being
real responding to my condition, AD, I was sucking up the beauty of finally
having the gift that would challenge me fully. This was my ticket for having
taken this mantle my life. It is in this I finally found fulfillment having
lived.
If anything
sounds the Imposter it is in what I just said and believe to be. But, it is
not!
That vague
sense of phony, that feel of bottomless void in me, no longer plagues me.
Finally I found the round hole in the center of the wheel that fits the
circumference of me, me the axle that fits securely in that round hole.
My damaged
brain has quit working in many of its functions. I am blessed nonetheless, much
cognitive function remains. What remains has served me wonderfully. I have
worked the buns off my brain. I sincerely believe in response it has developed
new pathways, grown new tissue and tapped more fully into my right brain to
facilitate me in this cognitively damaged environment I now am in.
This
convinces me that my mind is more than my brain. It convinces me my mind is in
no way limited by my brain. My brain which is subject to the bio-chemical
process of my body can dysfunction, malfunction or deteriorate, destroying my
capacity to think with it in the same way my body is and will do in every one
of its other functions.
The brain
serves me in the same way a CPU serves the function of a computer. The brain
takes the data it stores evaluates and analyzes it. This essentially is the
exercise of its power which we call cognition. What is done with the product of
this function is what we make of it in our finite consequence.
We also have another use that can be made of the product of
cognition. This use is not of finite consequence as is our product from brain
function. The product doesn't start
and stop with birth and death as function of our brain does.
This other use is what the mind does with product of cognition.
The mind is neither controlled nor limited by the brain.
The mind
transcends the brain, is part of our overall consciousness, which transcends
the part of us that is born, lives and then dies.
Therefore,
when the brain is damaged or breaks down in part it has the potential to adjust
and adapt. It is a living bio-chemical process. As such it is able to think
through a new pathway using the overall mind for that purpose. The new pathway
is the CPU like connection, the combination of our brain body working with
our mind. It is the property of the brain, it interfaces with our mind.
The mind is
not limited by the damage to the brain.
It is with
AD I came to understand and appreciate the versatility of the brain in action,
whole, healthy or as in my case damaged and demented. The brain thrives,
adjusts, adapts in spite of the deterioration it experiences with this disease.
As such we can do so much with it.
In this we
can contribute to our quality of life as can those who would help us. Creating
programs to enhance this potential we have particularly as we are in the Early
Stage of AD are so very important.
For my
purposes as I surmise it, there are two factors I’ve had presented to me by
AD.
First is to
suffer this disease and the deteriorating brain that is part of it.
Secondly to
demonstrate what power remains to work our amazing capacity of brain power.
Putting our mind to it (literally) working around our deficiencies as yet
further of them impact us, this is where having our disease should take us.
All in all
it is a losing battle, but while I stay on top with the cognition to show for
it I will keep writing to demonstrate what is happening to my mind as AD
progresses.
While this
is happening I am performing in yet another scene of this multi act play in
which I am the Player. Living this act, the illusion of dementia, I am able to
do something good I could not have done without having the disease.
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