I Have This Terminal Disease,
It Moves So Slow It Is Killing Me!
Dementia Endured
One of 25 Best Alzheimer’s Blogs of 2012
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Mike Donohue is a brave man. Courageous, direct, and bold, his blog energizes readers with a passion for action. Dementia Endured gives a hint in the title as to the nature of this talented writer: he will endure. And with a personality like Mike’s, it’s easy to believe that he shall overcome, as well!
His life experiences are opened to the reader, and his journey recovering from alcoholism to adjusting to Alzheimer’s holds its own fascination for visitors to his site. Mike’s strength and determination will remind readers that dementias are one area in which it’s best not to hold any punches.
THIS BLOG IS ABOUT MY JOURNEY FROM AA TO AD.
I have survived alcoholism from which
I recovered thirty six years ago then
Alzheimer's disease with which I was
diagnosed nearly five years ago. Both
have had profound consequence. They
are associated, one leading to the other.
I write about the experience in a book
entitled From AA to AD, a Wistful Travelogue
click on the title to go to it or read more
about it in the column to the right
Wednesday, May 2, 2012
DIAGNOSIS: Alzheimer’s or Dementia, or Whatever?
With the escalating numbers of people classified as having
Alzheimer’s Disease (AD) we are faced with a national epidemic in the making.
Currently the Baby Boom is becoming the Senior Stampede. More folks are
reaching age 65 than ever before. They are all at the age of higher risk of
developing some form of Dementia.
This is at a level of public concern. It is a matter of
public concern only to the extent it is understood. Soon it will be better
understood as it becomes a scare and then will fall into a national panic. The
numbers having this disease; the cost of having it; the inadequate care
resources that now exist, all of this will focalize forcing the recognition of
the calamity it will become.
For twenty years massive research has been conducted to try
and find a cure. To date the research has not gotten anywhere close to a magic
pill or other form of cure or containment. It is not even understood by
researchers or by anyone else what the cause of Dementia is, particularly in
the area of AD. AD is approached as a specific disease in both the research and
the health care community. Dementia is seen as a classification of many
diseases of which one is AD.
The Crisis Point will be produced by the numbers reaching
seniors age, exacerbated by the population bulge now turning 65 and
statistically lasting for the next 18 years; the longer life span being experienced
in current years and the risk factor for all of an age greater than 65; this
will bring about a Critical Mass that will produce a chain reaction equivalent
of an Atomic Bomb reaching detonation. This obviously has the capacity of causing
us to all fall into a National Bankruptcy.
The occurrence of this bankruptcy will change the nation inalterably
should the nation be able to survive such a breakdown.
Can we do nothing to avert this tragedy?
Under the current makeup of Dementia and AD Support,
Financial Interests, Inadequate infrastructure and the confiscatory cost of
this, the catastrophe is unavoidable!
I have posted to articles I find relevant. They are:
·
Half of Alzheimer's cases misdiagnosed
·
Low Rate of MCI Progression to Dementia in the Community
Click on either to go to my Archive to read.
These articles reflect the
differing views and the misconceptions that exist about AD and Dementia. Mild
Cognitive Impairment (MCI) a term given low grade early stage dementia by the
Mayo Clinic has caught on in the professional communities and now even is
reflected in the forthcoming definitions being proposed in the Diagnostic and
Statistical Manual of Mental Disorders (DSM
V) revision that is in process.
The interesting nuance prompting this change is that any
finding of mental impairment caused by injury to the organic brain, unless able
to be diagnosed specifically as a kind of Dementia other than AD, has fallen
into the classification AD. There was no other place to fit it in.
The significance of the articles posted, now that the new
description has been in use, the findings of AD are reducing where such a
diagnosis is unwarranted. This is having a negligible effect on the ultimate
numbers increase: it is important for a whole variety of other reasons.
Without having to bear the stigma of AD initially on an
early diagnosis of impairment, this encourages and makes an early diagnosis far
more acceptable. Early diagnosis allows for greater treatment, care, medicine
and programs to keep these folks in the early stage longer. This both increase
quality of life for those with “some” kind of impairment, it also saves their
families and nation the cost of care.
This alone reduces the numbers needing care. The first
article Half
of Alzheimer's cases misdiagnosed speaks for itself. It is noted in this
article:
Patients and their families can nevertheless benefit from an early and
accurate diagnosis. Ruling out other forms of dementia may help relatives plan
for future care and
determine their own risk for Alzheimer’s, for instance.
From the foregoing
only one conclusion can be drawn. That is the field is changing. It is moving
away from an automatic classification of AD, avoids non-action because of the
personal stigma a diagnosis of AD produces, and allows the impairment to find
its own appropriate niche.
This is a start and a good start in making the changes we
need to survive the occurrence of calamity that will result from no action.
There is of course more and difficult action sorely needed.
We need to educate everyone about the difference of Dementia, about AD not
always able to be discerned while in the early stage, but a more generalized
Dementia is able to be diagnosed and dealt with.
This means stepping away from the severely damaging stereotype
AD has become.
We need to create an entirely new paradigm for the treatment
and care of all Dementia.
We need to attack the cost of care head on.
Finally we need to take a real look at AD, recognize it as
no more than a general category under its more general parent category
Dementia. If we are to research for a cure we need to determine what mechanisms
of damage we are able to define, what common pathologies exist between them and
what it is the needs curing to eradicate the many different forms of this
disease.
I will follow with more on the foregoing in subsequent
posts. For now I point to the foregoing confusion in the field to exemplify the
need to drop AD as a knee jerk finding, limiting its diagnosis to when it in
fact can be identified, which is rarely in the early stage and get more on
point in protecting us from the ravages that are building, much of which is aggravated
by muddle in the way we are now handling it.
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Mike....I so appreciate your candidness about dementia and telling the truth. It is so important to get it out to the public, so, I applaude you for doing so. Thanks again!
ReplyDeleteSandy